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Presented By: Department of Learning Health Sciences

Developing a multi-center EHR-linked 'enhanced' registry to support care management, quality improvement, and research

Keith Marsolo, PhD, is an Associate Professor at the Children’s Hospital Research Foundation in Cincinnati and Associate Professor of Biomedical Informatics at the University of Cincinnati College of Medicine. Dr. Marsolo is also heavily involved in a number of national data sharing initiatives, including several that are part of PCORI’s National Patient-Centered Clinical Research Network.

With funding from the Agency for Healthcare Research & Quality (AHRQ), and in collaboration with the ImproveCareNow Network, Keith Marsolo, PhD and his team developed a proof-of-concept architecture for a network-based Learning Health System. This involved the transition of an existing registry to one that is linked to the electronic health record (EHR), which enabled a "data in once" strategy. They also worked to automate a series of reports that support care improvement while demonstrating the use of observational registry data for comparative effectiveness research. This talk will describe the results of their work, lessons learned, and opportunities that could help accelerate progress for future networks.

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